ME/CFS – the Severely and Very Severely Affected
Manuscripts in this monograph are sorted into five categories: 1. Case Reports: a description of living as a bedridden patient; structured interviews with severely affected ME/CFS patients; how past events contribute to severe ME/CFS; a comparison of moderately ill, severely ill, and very severely i...
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MDPI - Multidisciplinary Digital Publishing Institute
2024
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| On-line přístup: | ONIX_20240108_9783036593609_115 |
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| collection | Directory of Open Access Books |
| description | Manuscripts in this monograph are sorted into five categories: 1. Case Reports: a description of living as a bedridden patient; structured interviews with severely affected ME/CFS patients; how past events contribute to severe ME/CFS; a comparison of moderately ill, severely ill, and very severely ill; case reports of ME/CFS in children. 2. A healthcare provider’s view of managing ME/CFS patients. 3. Characterization of the Severely and Very Severely Affected: (1) the most troubling symptoms; (2) disease severity diminishes capacity for exercise, (3) operationalized definitions of the severely ill and very severely ill; (4) the usefulness of a modified Korean Chalder Fatigue Scale Questionnaire; (5) cardiac dimensions and function in patients; (6) an easier tilt test; and (7) review of sleep studies. 4. Progress in Diagnosis and Treatment: (1) objective measures for grading ME/CFS; (2) a sitting tilt test for orthostatic intolerance; (3) the benefits of IVIgG; (4) risks and protective factors in suicidality; (5) malnutrition and overcoming it; (7) partnerships between patients, caregivers, and providers, and the use of technology; (8) a holistic model of care, “Compassion in Practice; and (9) the effects of suffering, utilizing a four-phase model. 5. Impact of the Disease: (1) a historical perspective; (2) the impact of ME/CFS on psychosocial dynamics; (3) the educational needs of school-aged; and (4) the economic impact of ME/CFS |
| format | Online |
| id | doab-20.500.12854ir-132456 |
| institution | Directory of Open Access Books |
| language | eng |
| publishDate | 2024 |
| publishDateRange | 2024 |
| publishDateSort | 2024 |
| publisher | MDPI - Multidisciplinary Digital Publishing Institute |
| publisherStr | MDPI - Multidisciplinary Digital Publishing Institute |
| record_format | ojs |
| spelling | doab-20.500.12854ir-1324562024-04-01T23:19:17Z ME/CFS – the Severely and Very Severely Affected Friedman, Kenneth Bateman, Lucinda De Meirleir, Kenny Leo Adolescence Adulthood Apnea Apnea-hypopnea index Bedbound Cardiac Function Cardiopulmonary Exercise Testing Caregivers Case Study Cerebral Blood Flow Chronic Fatigue Syndrome Clinical Presentation Compassion In Practice Diagnosis Economic Impact Education Enteral Nutrition EUROMENE Europe-Wide Grief Homebound Illness progression Immunoglobulin Therapy Infection Isolation IVIgG Jarisch&ndash Herxheimer Reaction Laboratory Tests Lived experience Loss Malnutrition Mental Health ME/CFS Moderately Ill Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Orthostatic Stress Parenteral nutrition Patient Assessment Patient Management Prevention Psychological Causation Psychosocial Severely Ill Sleep Social Isolation Stigma Student Learning Suicidality Symptoms Telemedicine Trauma Treatment Tube feeding Very Severely III thema EDItEUR::N History and Archaeology::NH History thema EDItEUR::J Society and Social Sciences::JB Society and culture: general::JBF Social and ethical issues Manuscripts in this monograph are sorted into five categories: 1. Case Reports: a description of living as a bedridden patient; structured interviews with severely affected ME/CFS patients; how past events contribute to severe ME/CFS; a comparison of moderately ill, severely ill, and very severely ill; case reports of ME/CFS in children. 2. A healthcare provider’s view of managing ME/CFS patients. 3. Characterization of the Severely and Very Severely Affected: (1) the most troubling symptoms; (2) disease severity diminishes capacity for exercise, (3) operationalized definitions of the severely ill and very severely ill; (4) the usefulness of a modified Korean Chalder Fatigue Scale Questionnaire; (5) cardiac dimensions and function in patients; (6) an easier tilt test; and (7) review of sleep studies. 4. Progress in Diagnosis and Treatment: (1) objective measures for grading ME/CFS; (2) a sitting tilt test for orthostatic intolerance; (3) the benefits of IVIgG; (4) risks and protective factors in suicidality; (5) malnutrition and overcoming it; (7) partnerships between patients, caregivers, and providers, and the use of technology; (8) a holistic model of care, “Compassion in Practice; and (9) the effects of suffering, utilizing a four-phase model. 5. Impact of the Disease: (1) a historical perspective; (2) the impact of ME/CFS on psychosocial dynamics; (3) the educational needs of school-aged; and (4) the economic impact of ME/CFS 2024-01-08T14:54:56Z 2024-01-08T14:54:56Z 2023 book ONIX_20240108_9783036593609_115 9783036593609 9783036593616 https://directory.doabooks.org/handle/20.500.12854/132456 eng application/octet-stream Attribution 4.0 International https://mdpi.com/books/pdfview/book/8496 https://mdpi.com/books/pdfview/book/8496 MDPI - Multidisciplinary Digital Publishing Institute 10.3390/books978-3-0365-9361-6 10.3390/books978-3-0365-9361-6 46cabcaa-dd94-4bfe-87b4-55023c1b36d0 9783036593609 9783036593616 358 Basel open access |
| spellingShingle | Adolescence Adulthood Apnea Apnea-hypopnea index Bedbound Cardiac Function Cardiopulmonary Exercise Testing Caregivers Case Study Cerebral Blood Flow Chronic Fatigue Syndrome Clinical Presentation Compassion In Practice Diagnosis Economic Impact Education Enteral Nutrition EUROMENE Europe-Wide Grief Homebound Illness progression Immunoglobulin Therapy Infection Isolation IVIgG Jarisch&ndash Herxheimer Reaction Laboratory Tests Lived experience Loss Malnutrition Mental Health ME/CFS Moderately Ill Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Orthostatic Stress Parenteral nutrition Patient Assessment Patient Management Prevention Psychological Causation Psychosocial Severely Ill Sleep Social Isolation Stigma Student Learning Suicidality Symptoms Telemedicine Trauma Treatment Tube feeding Very Severely III thema EDItEUR::N History and Archaeology::NH History thema EDItEUR::J Society and Social Sciences::JB Society and culture: general::JBF Social and ethical issues ME/CFS – the Severely and Very Severely Affected |
| title | ME/CFS – the Severely and Very Severely Affected |
| title_full | ME/CFS – the Severely and Very Severely Affected |
| title_fullStr | ME/CFS – the Severely and Very Severely Affected |
| title_full_unstemmed | ME/CFS – the Severely and Very Severely Affected |
| title_short | ME/CFS – the Severely and Very Severely Affected |
| title_sort | me cfs the severely and very severely affected |
| topic | Adolescence Adulthood Apnea Apnea-hypopnea index Bedbound Cardiac Function Cardiopulmonary Exercise Testing Caregivers Case Study Cerebral Blood Flow Chronic Fatigue Syndrome Clinical Presentation Compassion In Practice Diagnosis Economic Impact Education Enteral Nutrition EUROMENE Europe-Wide Grief Homebound Illness progression Immunoglobulin Therapy Infection Isolation IVIgG Jarisch&ndash Herxheimer Reaction Laboratory Tests Lived experience Loss Malnutrition Mental Health ME/CFS Moderately Ill Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Orthostatic Stress Parenteral nutrition Patient Assessment Patient Management Prevention Psychological Causation Psychosocial Severely Ill Sleep Social Isolation Stigma Student Learning Suicidality Symptoms Telemedicine Trauma Treatment Tube feeding Very Severely III thema EDItEUR::N History and Archaeology::NH History thema EDItEUR::J Society and Social Sciences::JB Society and culture: general::JBF Social and ethical issues |
| topic_facet | Adolescence Adulthood Apnea Apnea-hypopnea index Bedbound Cardiac Function Cardiopulmonary Exercise Testing Caregivers Case Study Cerebral Blood Flow Chronic Fatigue Syndrome Clinical Presentation Compassion In Practice Diagnosis Economic Impact Education Enteral Nutrition EUROMENE Europe-Wide Grief Homebound Illness progression Immunoglobulin Therapy Infection Isolation IVIgG Jarisch&ndash Herxheimer Reaction Laboratory Tests Lived experience Loss Malnutrition Mental Health ME/CFS Moderately Ill Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Orthostatic Stress Parenteral nutrition Patient Assessment Patient Management Prevention Psychological Causation Psychosocial Severely Ill Sleep Social Isolation Stigma Student Learning Suicidality Symptoms Telemedicine Trauma Treatment Tube feeding Very Severely III thema EDItEUR::N History and Archaeology::NH History thema EDItEUR::J Society and Social Sciences::JB Society and culture: general::JBF Social and ethical issues |
| url | ONIX_20240108_9783036593609_115 |