Genome Finland

Genome Finland tells a story of genomic medicine in Finland from the study of rare Finnish diseases in the 1960s and 1970s to the implementation of personalized medicine in the 2020s. The main focus is on the 21st century – the period after the Human Genome Project – and on the establishment of new...

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Główni autorzy: Helén, Ilpo, Snell, Karoliina, Tarkkala, Heta, Tupasela, Aaro
Format: Online
Język:angielski
Wydane: Helsinki University Press 2024
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Dostęp online:https://library.oapen.org/handle/20.500.12657/91187
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author Helén, Ilpo
Snell, Karoliina
Tarkkala, Heta
Tupasela, Aaro
author_browse Helén, Ilpo
Snell, Karoliina
Tarkkala, Heta
Tupasela, Aaro
author_facet Helén, Ilpo
Snell, Karoliina
Tarkkala, Heta
Tupasela, Aaro
author_sort Helén, Ilpo
collection Directory of Open Access Books
description Genome Finland tells a story of genomic medicine in Finland from the study of rare Finnish diseases in the 1960s and 1970s to the implementation of personalized medicine in the 2020s. The main focus is on the 21st century – the period after the Human Genome Project – and on the establishment of new infrastructures to support genomic medicine, such as biobanks. The book opens up the reasoning and discussions as well as the settings and events through which Finnish medical genetics reached the top level of international biomedicine in the late 1990s, biobanks and biobank research evolved during the 2000s and 2010s, and large transnational public-private partnership projects utilising massive amounts of genome and patient data started to dominate also Finnish research into the 2020s. In particular, Genome Finland examines and exposes the connections between biomedical science, ‘knowledge-based’ economy and business, and innovation policy in Finland during the past decades.
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institution Directory of Open Access Books
language eng
publishDate 2024
publishDateRange 2024
publishDateSort 2024
publisher Helsinki University Press
publisherStr Helsinki University Press
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spelling doab-20.500.12854ir-1391362025-08-12T05:13:31Z Genome Finland Helén, Ilpo Snell, Karoliina Tarkkala, Heta Tupasela, Aaro Nordic welfare state; Data economy; Biobanking; Informed consent; Biomedical research and innovation; Genomics thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBX History of medicine thema EDItEUR::Y Children’s, Teenage and Educational::YN Children’s / Teenage: General interest::YNT Children’s / Teenage general interest: Science and technology thema EDItEUR::J Society and Social Sciences::JH Sociology and anthropology::JHB Sociology thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBS Medical sociology Genome Finland tells a story of genomic medicine in Finland from the study of rare Finnish diseases in the 1960s and 1970s to the implementation of personalized medicine in the 2020s. The main focus is on the 21st century – the period after the Human Genome Project – and on the establishment of new infrastructures to support genomic medicine, such as biobanks. The book opens up the reasoning and discussions as well as the settings and events through which Finnish medical genetics reached the top level of international biomedicine in the late 1990s, biobanks and biobank research evolved during the 2000s and 2010s, and large transnational public-private partnership projects utilising massive amounts of genome and patient data started to dominate also Finnish research into the 2020s. In particular, Genome Finland examines and exposes the connections between biomedical science, ‘knowledge-based’ economy and business, and innovation policy in Finland during the past decades. 2024-07-02T04:03:15Z 2024-07-02T04:03:15Z 2024-07-01T12:31:50Z 2024 book https://library.oapen.org/handle/20.500.12657/91187 9789523691063 9789523691087 https://directory.doabooks.org/handle/20.500.12854/139136 eng open access image/jpeg image/jpeg Attribution-NonCommercial 4.0 International Attribution-NonCommercial 4.0 International https://library.oapen.org/bitstream/20.500.12657/91187/1/genome-finland.pdf https://library.oapen.org/bitstream/20.500.12657/91187/1/genome-finland.pdf Helsinki University Press 10.33134/HUP-24 10.33134/HUP-24 cf5d0b3e-caff-497f-94d0-292cc4b4fce2 9789523691063 9789523691087 310 Helsinki open access
spellingShingle Nordic welfare state; Data economy; Biobanking; Informed consent; Biomedical research and innovation; Genomics
thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBX History of medicine
thema EDItEUR::Y Children’s, Teenage and Educational::YN Children’s / Teenage: General interest::YNT Children’s / Teenage general interest: Science and technology
thema EDItEUR::J Society and Social Sciences::JH Sociology and anthropology::JHB Sociology
thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBS Medical sociology
Helén, Ilpo
Snell, Karoliina
Tarkkala, Heta
Tupasela, Aaro
Genome Finland
title Genome Finland
title_full Genome Finland
title_fullStr Genome Finland
title_full_unstemmed Genome Finland
title_short Genome Finland
title_sort genome finland
topic Nordic welfare state; Data economy; Biobanking; Informed consent; Biomedical research and innovation; Genomics
thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBX History of medicine
thema EDItEUR::Y Children’s, Teenage and Educational::YN Children’s / Teenage: General interest::YNT Children’s / Teenage general interest: Science and technology
thema EDItEUR::J Society and Social Sciences::JH Sociology and anthropology::JHB Sociology
thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBS Medical sociology
topic_facet Nordic welfare state; Data economy; Biobanking; Informed consent; Biomedical research and innovation; Genomics
thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBX History of medicine
thema EDItEUR::Y Children’s, Teenage and Educational::YN Children’s / Teenage: General interest::YNT Children’s / Teenage general interest: Science and technology
thema EDItEUR::J Society and Social Sciences::JH Sociology and anthropology::JHB Sociology
thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBS Medical sociology
url https://library.oapen.org/handle/20.500.12657/91187
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AT snellkaroliina genomefinland
AT tarkkalaheta genomefinland
AT tupaselaaaro genomefinland