Chapter 11 Federated networks and secondary uses of health data
This timely volume provides a comprehensive examination of how the proposed new European Health Data Space (EHDS) legislation will impact upon health and genetic data, individual privacy and providers of health services. With the current legal framework recognised as insufficient in protecting data-...
I tiakina i:
| Ngā kaituhi matua: | , |
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| Hōputu: | Online |
| Reo: | Ingarihi |
| I whakaputaina: |
Taylor & Francis
2025
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| Ngā marau: | |
| Urunga tuihono: | https://library.oapen.org/handle/20.500.12657/99322 |
| Ngā Tūtohu: |
Kāore He Tūtohu, Me noho koe te mea tuatahi ki te tūtohu i tēnei pūkete!
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| _version_ | 1869517406756405248 |
|---|---|
| author | Kogut - Czarkowska, Magdalena Shabani, Mahsa |
| author_browse | Kogut - Czarkowska, Magdalena Shabani, Mahsa |
| author_facet | Kogut - Czarkowska, Magdalena Shabani, Mahsa |
| author_sort | Kogut - Czarkowska, Magdalena |
| collection | Directory of Open Access Books |
| description | This timely volume provides a comprehensive examination of how the proposed new European Health Data Space (EHDS) legislation will impact upon health and genetic data, individual privacy and providers of health services. With the current legal framework recognised as insufficient in protecting data-related rights, the book spotlights the opportunities and challenges posed by the EHDS in balancing the interests of individuals with policymakers and researchers. It considers the impact on individual EU member states while highlighting issues such as changes to patients’ rights, wearable technology, developments in e-health and the secondary use of medical data. Critically, it also examines how the EHDS will operate within existing legal frameworks, including the General Data Protection Regulation, the Data Governance Act and the Data Act. Including contributions from some of the leading scholars in this area, this groundbreaking book will be key reading for students and researchers across law and public health. |
| format | Online |
| id | doab-20.500.12854ir-156976 |
| institution | Directory of Open Access Books |
| language | eng |
| publishDate | 2025 |
| publishDateRange | 2025 |
| publishDateSort | 2025 |
| publisher | Taylor & Francis |
| publisherStr | Taylor & Francis |
| record_format | ojs |
| spelling | doab-20.500.12854ir-1569762025-07-30T08:59:57Z Chapter 11 Federated networks and secondary uses of health data Kogut - Czarkowska, Magdalena Shabani, Mahsa data protection,medical privacy,EU law,e-health,mhealth,genetic data,European Health Data Space,Data Governance Act,Data Market Economy,Health and genetic data protection thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTJ Public health and safety law thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTM Medical and healthcare law thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBF Medical and health informatics thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBN Public health and preventive medicine thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTJ Public health and safety law thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTM Medical and healthcare law thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBF Medical and health informatics thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBN Public health and preventive medicine This timely volume provides a comprehensive examination of how the proposed new European Health Data Space (EHDS) legislation will impact upon health and genetic data, individual privacy and providers of health services. With the current legal framework recognised as insufficient in protecting data-related rights, the book spotlights the opportunities and challenges posed by the EHDS in balancing the interests of individuals with policymakers and researchers. It considers the impact on individual EU member states while highlighting issues such as changes to patients’ rights, wearable technology, developments in e-health and the secondary use of medical data. Critically, it also examines how the EHDS will operate within existing legal frameworks, including the General Data Protection Regulation, the Data Governance Act and the Data Act. Including contributions from some of the leading scholars in this area, this groundbreaking book will be key reading for students and researchers across law and public health. 2025-03-11T15:56:09Z 2025-03-11T15:56:09Z 2025-03-10T11:09:50Z 2025 chapter https://library.oapen.org/handle/20.500.12657/99322 9781032822884 9781032896847 https://directory.doabooks.org/handle/20.500.12854/156976 eng open access image/jpeg image/jpeg Attribution-NonCommercial-NoDerivatives 4.0 International Attribution-NonCommercial-NoDerivatives 4.0 International https://library.oapen.org/bitstream/20.500.12657/99322/1/9781003544111_10.4324_9781003544111-14.pdf https://library.oapen.org/bitstream/20.500.12657/99322/1/9781003544111_10.4324_9781003544111-14.pdf Taylor & Francis Routledge 10.4324/9781003544111-14 10.4324/9781003544111-14 fa69b019-f4ee-4979-8d42-c6b6c476b5f0 The European Health Data Space 9781032822884 9781032896847 Routledge 27 open access |
| spellingShingle | data protection,medical privacy,EU law,e-health,mhealth,genetic data,European Health Data Space,Data Governance Act,Data Market Economy,Health and genetic data protection thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTJ Public health and safety law thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTM Medical and healthcare law thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBF Medical and health informatics thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBN Public health and preventive medicine thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTJ Public health and safety law thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTM Medical and healthcare law thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBF Medical and health informatics thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBN Public health and preventive medicine Kogut - Czarkowska, Magdalena Shabani, Mahsa Chapter 11 Federated networks and secondary uses of health data |
| title | Chapter 11 Federated networks and secondary uses of health data |
| title_full | Chapter 11 Federated networks and secondary uses of health data |
| title_fullStr | Chapter 11 Federated networks and secondary uses of health data |
| title_full_unstemmed | Chapter 11 Federated networks and secondary uses of health data |
| title_short | Chapter 11 Federated networks and secondary uses of health data |
| title_sort | chapter 11 federated networks and secondary uses of health data |
| topic | data protection,medical privacy,EU law,e-health,mhealth,genetic data,European Health Data Space,Data Governance Act,Data Market Economy,Health and genetic data protection thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTJ Public health and safety law thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTM Medical and healthcare law thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBF Medical and health informatics thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBN Public health and preventive medicine thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTJ Public health and safety law thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTM Medical and healthcare law thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBF Medical and health informatics thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBN Public health and preventive medicine |
| topic_facet | data protection,medical privacy,EU law,e-health,mhealth,genetic data,European Health Data Space,Data Governance Act,Data Market Economy,Health and genetic data protection thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTJ Public health and safety law thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTM Medical and healthcare law thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBF Medical and health informatics thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBN Public health and preventive medicine thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTJ Public health and safety law thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTM Medical and healthcare law thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBF Medical and health informatics thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBN Public health and preventive medicine |
| url | https://library.oapen.org/handle/20.500.12657/99322 |
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