Chapter 5 Transforming the secondary use of patient data in the European Health Data Space

This timely volume provides a comprehensive examination of how the proposed new European Health Data Space (EHDS) legislation will impact upon health and genetic data, individual privacy and providers of health services. With the current legal framework recognised as insufficient in protecting data-...

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Main Author: Spajić, Daniela
Format: Online
Language:English
Published: Taylor & Francis 2025
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Online Access:https://library.oapen.org/handle/20.500.12657/100202
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author Spajić, Daniela
author_browse Spajić, Daniela
author_facet Spajić, Daniela
author_sort Spajić, Daniela
collection Directory of Open Access Books
description This timely volume provides a comprehensive examination of how the proposed new European Health Data Space (EHDS) legislation will impact upon health and genetic data, individual privacy and providers of health services. With the current legal framework recognised as insufficient in protecting data-related rights, the book spotlights the opportunities and challenges posed by the EHDS in balancing the interests of individuals with policymakers and researchers. It considers the impact on individual EU member states while highlighting issues such as changes to patients’ rights, wearable technology, developments in e-health and the secondary use of medical data. Critically, it also examines how the EHDS will operate within existing legal frameworks, including the General Data Protection Regulation, the Data Governance Act and the Data Act. Including contributions from some of the leading scholars in this area, this groundbreaking book will be key reading for students and researchers across law and public health.
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spelling doab-20.500.12854ir-1576072025-06-24T05:24:12Z Chapter 5 Transforming the secondary use of patient data in the European Health Data Space Spajić, Daniela data protection,medical privacy,EU law,e-health,mhealth,genetic data,European Health Data Space,Data Governance Act,Data Market Economy,Health and genetic data protection thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTJ Public health and safety law thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTM Medical and healthcare law thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBF Medical and health informatics thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBN Public health and preventive medicine This timely volume provides a comprehensive examination of how the proposed new European Health Data Space (EHDS) legislation will impact upon health and genetic data, individual privacy and providers of health services. With the current legal framework recognised as insufficient in protecting data-related rights, the book spotlights the opportunities and challenges posed by the EHDS in balancing the interests of individuals with policymakers and researchers. It considers the impact on individual EU member states while highlighting issues such as changes to patients’ rights, wearable technology, developments in e-health and the secondary use of medical data. Critically, it also examines how the EHDS will operate within existing legal frameworks, including the General Data Protection Regulation, the Data Governance Act and the Data Act. Including contributions from some of the leading scholars in this area, this groundbreaking book will be key reading for students and researchers across law and public health. 2025-03-21T09:40:13Z 2025-03-21T09:40:13Z 2025-03-20T13:16:35Z 2025 chapter https://library.oapen.org/handle/20.500.12657/100202 9781032822884 9781032896847 https://directory.doabooks.org/handle/20.500.12854/157607 eng open access image/jpeg image/jpeg Attribution-NonCommercial-NoDerivatives 4.0 International Attribution-NonCommercial-NoDerivatives 4.0 International https://library.oapen.org/bitstream/20.500.12657/100202/1/9781003544111_10.4324_9781003544111-7.pdf https://library.oapen.org/bitstream/20.500.12657/100202/1/9781003544111_10.4324_9781003544111-7.pdf Taylor & Francis Routledge 10.4324/9781003544111-7 10.4324/9781003544111-7 fa69b019-f4ee-4979-8d42-c6b6c476b5f0 The European Health Data Space 9781032822884 9781032896847 Routledge 24 open access
spellingShingle data protection,medical privacy,EU law,e-health,mhealth,genetic data,European Health Data Space,Data Governance Act,Data Market Economy,Health and genetic data protection
thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTJ Public health and safety law
thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTM Medical and healthcare law
thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBF Medical and health informatics
thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBN Public health and preventive medicine
Spajić, Daniela
Chapter 5 Transforming the secondary use of patient data in the European Health Data Space
title Chapter 5 Transforming the secondary use of patient data in the European Health Data Space
title_full Chapter 5 Transforming the secondary use of patient data in the European Health Data Space
title_fullStr Chapter 5 Transforming the secondary use of patient data in the European Health Data Space
title_full_unstemmed Chapter 5 Transforming the secondary use of patient data in the European Health Data Space
title_short Chapter 5 Transforming the secondary use of patient data in the European Health Data Space
title_sort chapter 5 transforming the secondary use of patient data in the european health data space
topic data protection,medical privacy,EU law,e-health,mhealth,genetic data,European Health Data Space,Data Governance Act,Data Market Economy,Health and genetic data protection
thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTJ Public health and safety law
thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTM Medical and healthcare law
thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBF Medical and health informatics
thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBN Public health and preventive medicine
topic_facet data protection,medical privacy,EU law,e-health,mhealth,genetic data,European Health Data Space,Data Governance Act,Data Market Economy,Health and genetic data protection
thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTJ Public health and safety law
thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTM Medical and healthcare law
thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBF Medical and health informatics
thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBN Public health and preventive medicine
url https://library.oapen.org/handle/20.500.12657/100202
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