Biobanques humaines, internormativité et gouvernance
Human biobanks, which store biological material and data, are essential tools for medical progress, research and personalized medicine. In Switzerland, their legal framework remains fragmented. This thesis examines their diversity, the issues they present and the regulatory framework that apply to t...
I tiakina i:
| Kaituhi matua: | |
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| Hōputu: | Online |
| Reo: | Wīwī |
| I whakaputaina: |
sui generis Verlag
2025
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| Ngā marau: | |
| Urunga tuihono: | ONIX_20251209T143014_9783907297704_6 |
| Ngā Tūtohu: |
Kāore He Tūtohu, Me noho koe te mea tuatahi ki te tūtohu i tēnei pūkete!
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| _version_ | 1869525147357020160 |
|---|---|
| author | Talanova, Vladislava |
| author_browse | Talanova, Vladislava |
| author_facet | Talanova, Vladislava |
| author_sort | Talanova, Vladislava |
| collection | Directory of Open Access Books |
| description | Human biobanks, which store biological material and data, are essential tools for medical progress, research and personalized medicine. In Switzerland, their legal framework remains fragmented. This thesis examines their diversity, the issues they present and the regulatory framework that apply to them, distinguishing between binding and non-binding standards. It analyses non-binding norms – which are, in principle, not legally binding – and the ways in which they are incorporated into Swiss law. The concept of governance, defined by the principles of trust, protection of individuals, participation, transparency and accountability, is applied to biobanks through six groups of mechanisms examined in the Swiss context. |
| format | Online |
| id | doab-20.500.12854ir-170042 |
| institution | Directory of Open Access Books |
| language | fre |
| publishDate | 2025 |
| publishDateRange | 2025 |
| publishDateSort | 2025 |
| publisher | sui generis Verlag |
| publisherStr | sui generis Verlag |
| record_format | ojs |
| spelling | doab-20.500.12854ir-1700422025-12-10T05:22:06Z Biobanques humaines, internormativité et gouvernance Talanova, Vladislava research biobank internormativity non binding norm principle of governance biobank governance trust participation transparency responsibility thema EDItEUR::L Law Human biobanks, which store biological material and data, are essential tools for medical progress, research and personalized medicine. In Switzerland, their legal framework remains fragmented. This thesis examines their diversity, the issues they present and the regulatory framework that apply to them, distinguishing between binding and non-binding standards. It analyses non-binding norms – which are, in principle, not legally binding – and the ways in which they are incorporated into Swiss law. The concept of governance, defined by the principles of trust, protection of individuals, participation, transparency and accountability, is applied to biobanks through six groups of mechanisms examined in the Swiss context. 2025-12-10T05:22:05Z 2025-12-10T05:22:05Z 2025-12-09T13:32:48Z 2025 book ONIX_20251209T143014_9783907297704_6 https://library.oapen.org/handle/20.500.12657/109035 9783907297704 https://directory.doabooks.org/handle/20.500.12854/170042 fre open access image/jpeg Attribution 4.0 International https://library.oapen.org/bitstream/20.500.12657/109035/1/9783907297704.pdf sui generis Verlag 10.38107/070 10.38107/070 d0408bce-74b7-4793-a126-7c47e3617d24 9783907297704 538 Zürich open access |
| spellingShingle | research biobank internormativity non binding norm principle of governance biobank governance trust participation transparency responsibility thema EDItEUR::L Law Talanova, Vladislava Biobanques humaines, internormativité et gouvernance |
| title | Biobanques humaines, internormativité et gouvernance |
| title_full | Biobanques humaines, internormativité et gouvernance |
| title_fullStr | Biobanques humaines, internormativité et gouvernance |
| title_full_unstemmed | Biobanques humaines, internormativité et gouvernance |
| title_short | Biobanques humaines, internormativité et gouvernance |
| title_sort | biobanques humaines internormativite et gouvernance |
| topic | research biobank internormativity non binding norm principle of governance biobank governance trust participation transparency responsibility thema EDItEUR::L Law |
| topic_facet | research biobank internormativity non binding norm principle of governance biobank governance trust participation transparency responsibility thema EDItEUR::L Law |
| url | ONIX_20251209T143014_9783907297704_6 |
| work_keys_str_mv | AT talanovavladislava biobanqueshumainesinternormativiteetgouvernance |