Usher Syndrome
Few books for health and social care students, professionals and practitioners are written by the very people impacted by a condition. Usher syndrome is a diverse collection of types, subtypes and complexities. It has been called ‘a life of adjustments’, and this book unpacks these and explains how...
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| Formaat: | Online |
| Taal: | Engels |
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Lived Places Publishing
2026
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| Online toegang: | https://directory.doabooks.org/handle/20.500.12854/176316 |
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| _version_ | 1869519206356090880 |
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| author | Watharow, Annmaree Shepard, Emily Boswell, Emma |
| author_browse | Boswell, Emma Shepard, Emily Watharow, Annmaree |
| author_facet | Watharow, Annmaree Shepard, Emily Boswell, Emma |
| author_sort | Watharow, Annmaree |
| collection | Directory of Open Access Books |
| description | Few books for health and social care students, professionals and practitioners are written by the very people impacted by a condition. Usher syndrome is a diverse collection of types, subtypes and complexities. It has been called ‘a life of adjustments’, and this book unpacks these and explains how you can help support and communicate with us and others who live with Usher syndrome. The three authors all have lived experience, expertise and knowledge of life with Usher syndrome for individuals, parents, families, partners, siblings and supporters. Lived experiences inform and imbue each chapter. The lived expertise that comes from being clinicians, colleagues, researchers, peer supports, advocates, parents of and parents with Usher syndrome directs content to reflect what the community wants you, the reader, to know about Usher: the basics, the genetics, diagnoses, diversity,
extended family impacts, life-long adjustments, downsides and upsides. We give the reader blueprints for better communication, better health and well-being and solutions for every day. Usher syndrome is complex and challenging, but we are capable contributors when well supported. This book is strong evidence of this. |
| format | Online |
| id | doab-20.500.12854ir-176316 |
| institution | Directory of Open Access Books |
| language | eng |
| publishDate | 2026 |
| publishDateRange | 2026 |
| publishDateSort | 2026 |
| publisher | Lived Places Publishing |
| publisherStr | Lived Places Publishing |
| record_format | ojs |
| spelling | doab-20.500.12854ir-1763162026-05-08T06:34:45Z Usher Syndrome Watharow, Annmaree Shepard, Emily Boswell, Emma Mellifont, Damian Usher syndrome, deafblindness, dual sensory impairment, communication, disability, life adjustment, Charles Bonnet syndrome thema EDItEUR::F Fiction and Related items::FX Fiction: narrative themes::FXK Narrative theme: Health and illness Few books for health and social care students, professionals and practitioners are written by the very people impacted by a condition. Usher syndrome is a diverse collection of types, subtypes and complexities. It has been called ‘a life of adjustments’, and this book unpacks these and explains how you can help support and communicate with us and others who live with Usher syndrome. The three authors all have lived experience, expertise and knowledge of life with Usher syndrome for individuals, parents, families, partners, siblings and supporters. Lived experiences inform and imbue each chapter. The lived expertise that comes from being clinicians, colleagues, researchers, peer supports, advocates, parents of and parents with Usher syndrome directs content to reflect what the community wants you, the reader, to know about Usher: the basics, the genetics, diagnoses, diversity, extended family impacts, life-long adjustments, downsides and upsides. We give the reader blueprints for better communication, better health and well-being and solutions for every day. Usher syndrome is complex and challenging, but we are capable contributors when well supported. This book is strong evidence of this. Published 2026-05-08T06:34:35Z 2026-05-08T06:34:35Z 2026-04-30 book 9781917566124 9781917566131 9781917566148 https://directory.doabooks.org/handle/20.500.12854/176316 eng Disability Studies image/png application/pdf n/a n/a https://livedplacespublishing.com/book/isbn/9781917566124 https://livedplacespublishing.com/book/isbn/9781917566124 Lived Places Publishing Lived Places Publishing https://doi.org/10.62859/9781917566148 https://doi.org/10.62859/9781917566148 fb04d508-733e-4175-bf72-0fc281cd1920 9781917566124 9781917566131 9781917566148 Lived Places Publishing 344 open access |
| spellingShingle | Usher syndrome, deafblindness, dual sensory impairment, communication, disability, life adjustment, Charles Bonnet syndrome thema EDItEUR::F Fiction and Related items::FX Fiction: narrative themes::FXK Narrative theme: Health and illness Watharow, Annmaree Shepard, Emily Boswell, Emma Usher Syndrome |
| title | Usher Syndrome |
| title_full | Usher Syndrome |
| title_fullStr | Usher Syndrome |
| title_full_unstemmed | Usher Syndrome |
| title_short | Usher Syndrome |
| title_sort | usher syndrome |
| topic | Usher syndrome, deafblindness, dual sensory impairment, communication, disability, life adjustment, Charles Bonnet syndrome thema EDItEUR::F Fiction and Related items::FX Fiction: narrative themes::FXK Narrative theme: Health and illness |
| topic_facet | Usher syndrome, deafblindness, dual sensory impairment, communication, disability, life adjustment, Charles Bonnet syndrome thema EDItEUR::F Fiction and Related items::FX Fiction: narrative themes::FXK Narrative theme: Health and illness |
| url | https://directory.doabooks.org/handle/20.500.12854/176316 |
| work_keys_str_mv | AT watharowannmaree ushersyndrome AT shepardemily ushersyndrome AT boswellemma ushersyndrome |