The Ethics of Medical Data Donation
This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the...
-д хадгалсан:
| Формат: | Online |
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| Хэл сонгох: | англи |
| Хэвлэсэн: |
Springer Nature
2021
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| Нөхцлүүд: | |
| Онлайн хандалт: | 1007044 |
| Шошгууд: |
Шошго байхгүй, Энэхүү баримтыг шошголох эхний хүн болох!
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| _version_ | 1869524062922866688 |
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| collection | Directory of Open Access Books |
| description | This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one’s own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes. |
| format | Online |
| id | doab-20.500.12854ir-32527 |
| institution | Directory of Open Access Books |
| language | eng |
| publishDate | 2021 |
| publishDateRange | 2021 |
| publishDateSort | 2021 |
| publisher | Springer Nature |
| publisherStr | Springer Nature |
| record_format | ojs |
| spelling | doab-20.500.12854ir-325272025-07-30T10:21:21Z The Ethics of Medical Data Donation Krutzinna, Jenny Floridi, Luciano Medicine Medical policy Social policy Philosophy thema EDItEUR::Q Philosophy and Religion::QD Philosophy thema EDItEUR::K Economics, Finance, Business and Management::KC Economics::KCP Political economy thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBP Health systems and services thema EDItEUR::Q Philosophy and Religion::QD Philosophy thema EDItEUR::K Economics, Finance, Business and Management::KC Economics::KCP Political economy thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBP Health systems and services This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one’s own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes. 2021-02-10T13:59:49Z 2021-02-10T13:59:49Z 2020-03-18 13:36:15 2020-04-01T09:04:03Z 2019 book 1007044 OCN: 1083307414 http://library.oapen.org/handle/20.500.12657/23112 https://directory.doabooks.org/handle/20.500.12854/32527 eng Philosophical Studies Series open access image/jpeg image/jpeg image/jpeg n/a n/a n/a https://library.oapen.org/bitstream/20.500.12657/23112/1/1007044.pdf https://library.oapen.org/bitstream/20.500.12657/23112/1/1007044.pdf https://library.oapen.org/bitstream/20.500.12657/23112/1/1007044.pdf Springer Nature 10.1007/978-3-030-04363-6 10.1007/978-3-030-04363-6 9fa3421d-f917-4153-b9ab-fc337c396b5a 198 Cham open access |
| spellingShingle | Medicine Medical policy Social policy Philosophy thema EDItEUR::Q Philosophy and Religion::QD Philosophy thema EDItEUR::K Economics, Finance, Business and Management::KC Economics::KCP Political economy thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBP Health systems and services thema EDItEUR::Q Philosophy and Religion::QD Philosophy thema EDItEUR::K Economics, Finance, Business and Management::KC Economics::KCP Political economy thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBP Health systems and services The Ethics of Medical Data Donation |
| title | The Ethics of Medical Data Donation |
| title_full | The Ethics of Medical Data Donation |
| title_fullStr | The Ethics of Medical Data Donation |
| title_full_unstemmed | The Ethics of Medical Data Donation |
| title_short | The Ethics of Medical Data Donation |
| title_sort | ethics of medical data donation |
| topic | Medicine Medical policy Social policy Philosophy thema EDItEUR::Q Philosophy and Religion::QD Philosophy thema EDItEUR::K Economics, Finance, Business and Management::KC Economics::KCP Political economy thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBP Health systems and services thema EDItEUR::Q Philosophy and Religion::QD Philosophy thema EDItEUR::K Economics, Finance, Business and Management::KC Economics::KCP Political economy thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBP Health systems and services |
| topic_facet | Medicine Medical policy Social policy Philosophy thema EDItEUR::Q Philosophy and Religion::QD Philosophy thema EDItEUR::K Economics, Finance, Business and Management::KC Economics::KCP Political economy thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBP Health systems and services thema EDItEUR::Q Philosophy and Religion::QD Philosophy thema EDItEUR::K Economics, Finance, Business and Management::KC Economics::KCP Political economy thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBP Health systems and services |
| url | 1007044 |