Chapter 9 Which Patient Takes Centre Stage?
The growth of personalised medicine and patient partnerships in biomedical research are reshaping both the emotional and material intersections between human patients and animal research. Through tracing the creative work of patients, publics, scientists, clinicians, artists, film-makers, and cam...
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| বিন্যাস: | Online |
| ভাষা: | ইংরেজি |
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Springer Nature
2021
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| অনলাইন ব্যবহার করুন: | https://library.oapen.org/handle/20.500.12657/47368 |
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| _version_ | 1869528977535664128 |
|---|---|
| author | Davies, Gail Gorman, Richard Crudgington, Bentley |
| author_browse | Crudgington, Bentley Davies, Gail Gorman, Richard |
| author_facet | Davies, Gail Gorman, Richard Crudgington, Bentley |
| author_sort | Davies, Gail |
| collection | Directory of Open Access Books |
| description | The growth of personalised medicine and patient partnerships in biomedical
research are reshaping both the emotional and material intersections
between human patients and animal research. Through tracing the creative work of
patients, publics, scientists, clinicians, artists, film-makers, and campaigning groups
this chapter explores how ‘patient voices’ are being rearticulated and represented
around animal research. The figure of ‘the patient’ has been a powerful actor in
arguments around animal research, mostly ‘spoken for’ by formal organisations,
especially in publicity material making ethical justifications for the need and funding
of medical research. Here, patient voices make corporeal needs legible, gather
expectations and resources, and provide the horizon for embodying future hopes.
However, the accessibility of digital media, alongside local institutional experiments
in openness, is creating alternative spaces for voicing patient interfaces with
animal research. On research establishment websites, and elsewhere, patients’ perspectives
are emerging in short films, taking up positions as narrators, tour guides,
and commentators, inviting the public to follow them into these previously inaccessible
spaces. The embodied experience of patients, sometimes severely affected by
the current absences in biomedical research, are used to authorise their presence in
these places, and allow them to ask questions of animal researchers. The films are
powerful and emotional vehicles for voicing patient experiences and opening up
animal research. They also refigure the affective responsibilities around animal
research, resituating a public debate around ethics within the body of the patient.
The future expectations personified in the abstract figure of the patient, are rendered
turbulent in the ambiguous corporeal encounter between human and animals undergoing
similar experiences of suffering. |
| format | Online |
| id | doab-20.500.12854ir-64093 |
| institution | Directory of Open Access Books |
| language | eng |
| publishDate | 2021 |
| publishDateRange | 2021 |
| publishDateSort | 2021 |
| publisher | Springer Nature |
| publisherStr | Springer Nature |
| record_format | ojs |
| spelling | doab-20.500.12854ir-640932025-01-15T18:01:41Z Chapter 9 Which Patient Takes Centre Stage? Davies, Gail Gorman, Richard Crudgington, Bentley medicine human patients animal research biomedical research thema EDItEUR::M Medicine and Nursing::MQ Nursing and ancillary services::MQW Biomedical engineering The growth of personalised medicine and patient partnerships in biomedical research are reshaping both the emotional and material intersections between human patients and animal research. Through tracing the creative work of patients, publics, scientists, clinicians, artists, film-makers, and campaigning groups this chapter explores how ‘patient voices’ are being rearticulated and represented around animal research. The figure of ‘the patient’ has been a powerful actor in arguments around animal research, mostly ‘spoken for’ by formal organisations, especially in publicity material making ethical justifications for the need and funding of medical research. Here, patient voices make corporeal needs legible, gather expectations and resources, and provide the horizon for embodying future hopes. However, the accessibility of digital media, alongside local institutional experiments in openness, is creating alternative spaces for voicing patient interfaces with animal research. On research establishment websites, and elsewhere, patients’ perspectives are emerging in short films, taking up positions as narrators, tour guides, and commentators, inviting the public to follow them into these previously inaccessible spaces. The embodied experience of patients, sometimes severely affected by the current absences in biomedical research, are used to authorise their presence in these places, and allow them to ask questions of animal researchers. The films are powerful and emotional vehicles for voicing patient experiences and opening up animal research. They also refigure the affective responsibilities around animal research, resituating a public debate around ethics within the body of the patient. The future expectations personified in the abstract figure of the patient, are rendered turbulent in the ambiguous corporeal encounter between human and animals undergoing similar experiences of suffering. 2021-03-19T03:01:28Z 2021-03-19T03:01:28Z 2021-03-18T12:58:04Z 2020 chapter https://library.oapen.org/handle/20.500.12657/47368 https://directory.doabooks.org/handle/20.500.12854/64093 eng open access image/jpeg image/jpeg image/jpeg Attribution 4.0 International Attribution 4.0 International Attribution 4.0 International https://library.oapen.org/bitstream/20.500.12657/47368/1/Bookshelf_NBK550914.pdf https://library.oapen.org/bitstream/20.500.12657/47368/1/Bookshelf_NBK550914.pdf https://library.oapen.org/bitstream/20.500.12657/47368/1/Bookshelf_NBK550914.pdf Springer Nature 10.1007/978-3-030-21406-7_9 10.1007/978-3-030-21406-7_9 9fa3421d-f917-4153-b9ab-fc337c396b5a GeoHumanities and Health Wellcome Trust d859fbd3-d884-4090-a0ec-baf821c9abfd Wellcome 15 205,393/Z/16/Z open access |
| spellingShingle | medicine human patients animal research biomedical research thema EDItEUR::M Medicine and Nursing::MQ Nursing and ancillary services::MQW Biomedical engineering Davies, Gail Gorman, Richard Crudgington, Bentley Chapter 9 Which Patient Takes Centre Stage? |
| title | Chapter 9 Which Patient Takes Centre Stage? |
| title_full | Chapter 9 Which Patient Takes Centre Stage? |
| title_fullStr | Chapter 9 Which Patient Takes Centre Stage? |
| title_full_unstemmed | Chapter 9 Which Patient Takes Centre Stage? |
| title_short | Chapter 9 Which Patient Takes Centre Stage? |
| title_sort | chapter 9 which patient takes centre stage |
| topic | medicine human patients animal research biomedical research thema EDItEUR::M Medicine and Nursing::MQ Nursing and ancillary services::MQW Biomedical engineering |
| topic_facet | medicine human patients animal research biomedical research thema EDItEUR::M Medicine and Nursing::MQ Nursing and ancillary services::MQW Biomedical engineering |
| url | https://library.oapen.org/handle/20.500.12657/47368 |
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