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Chapter 21 Medical privacy and big data

This This chapter aims to explore the challenge that big data brings to medical privacy. Section I offers a brief overview of the role of privacy in medical settings. I define define privacy as having one’s personal information and one’s personal sensorial space (what I call autotopos) unaccessed. S...

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Hovedforfatter: Véliz, Carissa
Format: Online
Sprog:engelsk
Udgivet: Oxford University Press 2021
Fag:
medical privacy
thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LND Constitutional and administrative law: general::LNDC Law: Human rights and civil liberties::LNDC2 Privacy law
thema EDItEUR::M Medicine and Nursing
Online adgang:https://library.oapen.org/handle/20.500.12657/48386
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Summary:This This chapter aims to explore the challenge that big data brings to medical privacy. Section I offers a brief overview of the role of privacy in medical settings. I define define privacy as having one’s personal information and one’s personal sensorial space (what I call autotopos) unaccessed. Section II discusses how the challenge of big data differs differs from other risks to medical privacy. Section III is about what can be done to minimise those risks. I argue that the most effective way of protecting people from suffering suffering suffering unfair medical consequences is by having a public universal healthcare system in which coverage is not influenced influenced influenced by personal data (e.g., genetic predisposition, exercise habits, eating habits, etc.).

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