Chapter 2 Family not to be informed?
What are the ethics that shape or should shape engagement with historical medical data, particularly archives containing patient voices? This question has come to the fore through the ‘Men, Women and Care’ project, a European Research Council-funded project creating a database of information drawn f...
Bewaard in:
| Hoofdauteurs: | , |
|---|---|
| Formaat: | Online |
| Taal: | Engels |
| Gepubliceerd in: |
Manchester University Press
2021
|
| Onderwerpen: | |
| Online toegang: | https://library.oapen.org/handle/20.500.12657/50925 |
| Tags: |
Geen labels, Wees de eerste die dit record labelt!
|
| _version_ | 1869518561845706752 |
|---|---|
| author | Meyer, Jessica Moncrieff, Alexia |
| author_browse | Meyer, Jessica Moncrieff, Alexia |
| author_facet | Meyer, Jessica Moncrieff, Alexia |
| author_sort | Meyer, Jessica |
| collection | Directory of Open Access Books |
| description | What are the ethics that shape or should shape engagement with historical medical data, particularly archives containing patient voices? This question has come to the fore through the ‘Men, Women and Care’ project, a European Research Council-funded project creating a database of information drawn from the PIN 26 personal pension award records from the First World War. Held by the National Archives, London, these records contain a wealth of personal information, including potentially sensitive details of medical conditions and diagnoses, as well as material concerning stigmatising social situations, such as domestic violence, prostitution and illegitimacy. Using material drawn from ‘Men, Women and Care’, this chapter considers the opportunities presented and challenges posed by this material as sources for historical analysis. It considers issues of both disciplinary practice and theoretical framing to explore the position of the historian in relation to analysing and disseminating the historical patient voice. In doing so, it asks what use historians can and should make of this information and what steps the historical community might consider taking to articulate a code of ethics around practice that is sensitive both to family feeling and academic enquiry. |
| format | Online |
| id | doab-20.500.12854ir-72283 |
| institution | Directory of Open Access Books |
| language | eng |
| publishDate | 2021 |
| publishDateRange | 2021 |
| publishDateSort | 2021 |
| publisher | Manchester University Press |
| publisherStr | Manchester University Press |
| record_format | ojs |
| spelling | doab-20.500.12854ir-722832025-08-13T14:11:19Z Chapter 2 Family not to be informed? Meyer, Jessica Moncrieff, Alexia consent; ethics; family history; footnotes; stigma; war pensions thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBX History of medicine thema EDItEUR::N History and Archaeology thema EDItEUR::3 Time period qualifiers::3M c 1500 onwards to present day::3MP 20th century, c 1900 to c 1999 thema EDItEUR::N History and Archaeology::NH History::NHD European history thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBX History of medicine thema EDItEUR::N History and Archaeology thema EDItEUR::3 Time period qualifiers::3M c 1500 onwards to present day::3MP 20th century, c 1900 to c 1999 thema EDItEUR::N History and Archaeology::NH History::NHD European history What are the ethics that shape or should shape engagement with historical medical data, particularly archives containing patient voices? This question has come to the fore through the ‘Men, Women and Care’ project, a European Research Council-funded project creating a database of information drawn from the PIN 26 personal pension award records from the First World War. Held by the National Archives, London, these records contain a wealth of personal information, including potentially sensitive details of medical conditions and diagnoses, as well as material concerning stigmatising social situations, such as domestic violence, prostitution and illegitimacy. Using material drawn from ‘Men, Women and Care’, this chapter considers the opportunities presented and challenges posed by this material as sources for historical analysis. It considers issues of both disciplinary practice and theoretical framing to explore the position of the historian in relation to analysing and disseminating the historical patient voice. In doing so, it asks what use historians can and should make of this information and what steps the historical community might consider taking to articulate a code of ethics around practice that is sensitive both to family feeling and academic enquiry. 2021-10-14T04:07:20Z 2021-10-14T04:07:20Z 2021-10-13T10:06:52Z 2021 chapter https://library.oapen.org/handle/20.500.12657/50925 https://directory.doabooks.org/handle/20.500.12854/72283 eng Social Histories of Medicine open access image/jpeg image/jpeg Attribution 4.0 International Attribution 4.0 International https://library.oapen.org/bitstream/20.500.12657/50925/1/9781526154897_ch2.pdf https://library.oapen.org/bitstream/20.500.12657/50925/1/9781526154897_ch2.pdf Manchester University Press bcb4ab08-c525-4e6c-88e5-a0cf0a175533 Patient voices in Britain, 1840–1948 28 Manchester open access |
| spellingShingle | consent; ethics; family history; footnotes; stigma; war pensions thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBX History of medicine thema EDItEUR::N History and Archaeology thema EDItEUR::3 Time period qualifiers::3M c 1500 onwards to present day::3MP 20th century, c 1900 to c 1999 thema EDItEUR::N History and Archaeology::NH History::NHD European history thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBX History of medicine thema EDItEUR::N History and Archaeology thema EDItEUR::3 Time period qualifiers::3M c 1500 onwards to present day::3MP 20th century, c 1900 to c 1999 thema EDItEUR::N History and Archaeology::NH History::NHD European history Meyer, Jessica Moncrieff, Alexia Chapter 2 Family not to be informed? |
| title | Chapter 2 Family not to be informed? |
| title_full | Chapter 2 Family not to be informed? |
| title_fullStr | Chapter 2 Family not to be informed? |
| title_full_unstemmed | Chapter 2 Family not to be informed? |
| title_short | Chapter 2 Family not to be informed? |
| title_sort | chapter 2 family not to be informed |
| topic | consent; ethics; family history; footnotes; stigma; war pensions thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBX History of medicine thema EDItEUR::N History and Archaeology thema EDItEUR::3 Time period qualifiers::3M c 1500 onwards to present day::3MP 20th century, c 1900 to c 1999 thema EDItEUR::N History and Archaeology::NH History::NHD European history thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBX History of medicine thema EDItEUR::N History and Archaeology thema EDItEUR::3 Time period qualifiers::3M c 1500 onwards to present day::3MP 20th century, c 1900 to c 1999 thema EDItEUR::N History and Archaeology::NH History::NHD European history |
| topic_facet | consent; ethics; family history; footnotes; stigma; war pensions thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBX History of medicine thema EDItEUR::N History and Archaeology thema EDItEUR::3 Time period qualifiers::3M c 1500 onwards to present day::3MP 20th century, c 1900 to c 1999 thema EDItEUR::N History and Archaeology::NH History::NHD European history thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBX History of medicine thema EDItEUR::N History and Archaeology thema EDItEUR::3 Time period qualifiers::3M c 1500 onwards to present day::3MP 20th century, c 1900 to c 1999 thema EDItEUR::N History and Archaeology::NH History::NHD European history |
| url | https://library.oapen.org/handle/20.500.12657/50925 |
| work_keys_str_mv | AT meyerjessica chapter2familynottobeinformed AT moncrieffalexia chapter2familynottobeinformed |