Chapter 7 Lost and Found
Both inside and outside the health services, patients and healthy citizens give rise to increasing amounts of health data. They are created, collected, curated, stored and used for multiple purposes in a process I characterise as intensified data sourcing. This data intensification changes how we de...
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| Fformat: | Online |
| Iaith: | Saesneg |
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Cambridge University Press
2022
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| Mynediad Ar-lein: | https://library.oapen.org/handle/20.500.12657/52700 |
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Dim Tagiau, Byddwch y cyntaf i dagio'r cofnod hwn!
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| _version_ | 1869518155987025920 |
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| author | Hoeyer, Klaus |
| author_browse | Hoeyer, Klaus |
| author_facet | Hoeyer, Klaus |
| author_sort | Hoeyer, Klaus |
| collection | Directory of Open Access Books |
| description | Both inside and outside the health services, patients and healthy citizens give rise to increasing amounts of health data. They are created, collected, curated, stored and used for multiple purposes in a process I characterise as intensified data sourcing. This data intensification changes how we deal with health issues. In this chapter I reflect on similarities and differences between data flows mediated by public and private institutions, using Denmark as my primary example. Denmark in interesting ways prescribes a form of solidarity that might be associated with We Medicine: people deliver data in the process of receiving, or in exchange for, publicly financed healthcare; and the data can be used for research for the common good. The solidarity of the model is currently being challenged in various ways, however, as authorities circumvent the voluntariness of participation and begin seeing health data as business opportunities. Simultaneously, a private market in health data is emerging mediated by privately owned platforms. The chapter compares the public and commercial forms of data sourcing to explore what is at stake for individuals and society in those processes. |
| format | Online |
| id | doab-20.500.12854ir-78212 |
| institution | Directory of Open Access Books |
| language | eng |
| publishDate | 2022 |
| publishDateRange | 2022 |
| publishDateSort | 2022 |
| publisher | Cambridge University Press |
| publisherStr | Cambridge University Press |
| record_format | ojs |
| spelling | doab-20.500.12854ir-782122025-05-09T12:27:58Z Chapter 7 Lost and Found Hoeyer, Klaus data sourcing; European healthcare; data flows; public institutions; private institutions; Denmark Both inside and outside the health services, patients and healthy citizens give rise to increasing amounts of health data. They are created, collected, curated, stored and used for multiple purposes in a process I characterise as intensified data sourcing. This data intensification changes how we deal with health issues. In this chapter I reflect on similarities and differences between data flows mediated by public and private institutions, using Denmark as my primary example. Denmark in interesting ways prescribes a form of solidarity that might be associated with We Medicine: people deliver data in the process of receiving, or in exchange for, publicly financed healthcare; and the data can be used for research for the common good. The solidarity of the model is currently being challenged in various ways, however, as authorities circumvent the voluntariness of participation and begin seeing health data as business opportunities. Simultaneously, a private market in health data is emerging mediated by privately owned platforms. The chapter compares the public and commercial forms of data sourcing to explore what is at stake for individuals and society in those processes. 2022-02-11T04:03:01Z 2022-02-11T04:03:01Z 2022-02-10T10:43:47Z 2018 chapter https://library.oapen.org/handle/20.500.12657/52700 https://directory.doabooks.org/handle/20.500.12854/78212 eng open access image/jpeg image/jpeg image/jpeg Attribution 4.0 International Attribution 4.0 International Attribution 4.0 International https://library.oapen.org/bitstream/20.500.12657/52700/1/Lost_and_Found-Relocating_the_Individual_in_the_Age_of_Intensified_Data_Sourcing_in_European_Healthcare.pdf https://library.oapen.org/bitstream/20.500.12657/52700/1/Lost_and_Found-Relocating_the_Individual_in_the_Age_of_Intensified_Data_Sourcing_in_European_Healthcare.pdf https://library.oapen.org/bitstream/20.500.12657/52700/1/Lost_and_Found-Relocating_the_Individual_in_the_Age_of_Intensified_Data_Sourcing_in_European_Healthcare.pdf Cambridge University Press 10.1017/9781108590600.007 10.1017/9781108590600.007 12615a55-20f1-4eb5-a6c9-5eb6541f63e5 Personalized medicine, individual choice and the common good H2020 European Research Council 178e65b9-dd53-4922-b85c-0aaa74fce079 European Research Council (ERC) EU collection 22 682110 open access |
| spellingShingle | data sourcing; European healthcare; data flows; public institutions; private institutions; Denmark Hoeyer, Klaus Chapter 7 Lost and Found |
| title | Chapter 7 Lost and Found |
| title_full | Chapter 7 Lost and Found |
| title_fullStr | Chapter 7 Lost and Found |
| title_full_unstemmed | Chapter 7 Lost and Found |
| title_short | Chapter 7 Lost and Found |
| title_sort | chapter 7 lost and found |
| topic | data sourcing; European healthcare; data flows; public institutions; private institutions; Denmark |
| topic_facet | data sourcing; European healthcare; data flows; public institutions; private institutions; Denmark |
| url | https://library.oapen.org/handle/20.500.12657/52700 |
| work_keys_str_mv | AT hoeyerklaus chapter7lostandfound |