Chapter 11: Ethical data management and sharing in uterus transplantation - reflections and recommendations

In this chapter we explore the topic of data sharing in the context of uterus transplantation (UTx), and both the benefits and the challenges that may arise from a commitment to data sharing in this arena. In section 2 we explore some of the benefits that may be produced through an open approach to...

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Hlavní autoři: Hammond-Browning, Natasha, Williams, Nicola J.
Médium: Online
Jazyk:angličtina
Vydáno: Edward Elgar Publishing 2024
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On-line přístup:https://directory.doabooks.org/handle/20.500.12854/143570
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Shrnutí:In this chapter we explore the topic of data sharing in the context of uterus transplantation (UTx), and both the benefits and the challenges that may arise from a commitment to data sharing in this arena. In section 2 we explore some of the benefits that may be produced through an open approach to data sharing and forward ethical arguments suggesting an obligation to share data absent compelling competing considerations. In section 3 we outline several concerns that may be expressed regarding open data-sharing (such as worries regarding privacy, confidentiality and fairness to researchers). In section 4 we explain how data is currently shared by clinicians conducting research into UTx and discuss several concerns that may be raised regarding these practices. In section 5 we then discuss the way forward for data sharing in UTx, addressing the question of how data-sharing practices may be improved in this context.