Chapter 11: Ethical data management and sharing in uterus transplantation - reflections and recommendations
In this chapter we explore the topic of data sharing in the context of uterus transplantation (UTx), and both the benefits and the challenges that may arise from a commitment to data sharing in this arena. In section 2 we explore some of the benefits that may be produced through an open approach to...
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| פורמט: | Online |
| שפה: | אנגלית |
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Edward Elgar Publishing
2024
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| גישה מקוונת: | https://directory.doabooks.org/handle/20.500.12854/143570 |
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| _version_ | 1869530587177418752 |
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| author | Hammond-Browning, Natasha Williams, Nicola J. |
| author_browse | Hammond-Browning, Natasha Williams, Nicola J. |
| author_facet | Hammond-Browning, Natasha Williams, Nicola J. |
| author_sort | Hammond-Browning, Natasha |
| collection | Directory of Open Access Books |
| description | In this chapter we explore the topic of data sharing in the context of uterus transplantation (UTx), and both the benefits and the challenges that may arise from a commitment to data sharing in this arena. In section 2 we explore some of the benefits that may be produced through an open approach to data sharing and forward ethical arguments suggesting an obligation to share data absent compelling competing considerations. In section 3 we outline several concerns that may be expressed regarding open data-sharing (such as worries regarding privacy, confidentiality and fairness to researchers). In section 4 we explain how data is currently shared by clinicians conducting research into UTx and discuss several concerns that may be raised regarding these practices. In section 5 we then discuss the way forward for data sharing in UTx, addressing the question of how data-sharing practices may be improved in this context. |
| format | Online |
| id | doab-20.500.12854ir-143570 |
| institution | Directory of Open Access Books |
| language | eng |
| publishDate | 2024 |
| publishDateRange | 2024 |
| publishDateSort | 2024 |
| publisher | Edward Elgar Publishing |
| publisherStr | Edward Elgar Publishing |
| record_format | ojs |
| spelling | doab-20.500.12854ir-1435702024-09-04T11:28:19Z Chapter 11: Ethical data management and sharing in uterus transplantation - reflections and recommendations Hammond-Browning, Natasha Williams, Nicola J. Uterus transplantation; Ethics; Law; Open science; Data management and sharing; Registry LNTM In this chapter we explore the topic of data sharing in the context of uterus transplantation (UTx), and both the benefits and the challenges that may arise from a commitment to data sharing in this arena. In section 2 we explore some of the benefits that may be produced through an open approach to data sharing and forward ethical arguments suggesting an obligation to share data absent compelling competing considerations. In section 3 we outline several concerns that may be expressed regarding open data-sharing (such as worries regarding privacy, confidentiality and fairness to researchers). In section 4 we explain how data is currently shared by clinicians conducting research into UTx and discuss several concerns that may be raised regarding these practices. In section 5 we then discuss the way forward for data sharing in UTx, addressing the question of how data-sharing practices may be improved in this context. Published 2024-09-04T11:28:15Z 2024-09-04T11:28:15Z 2024-08-02 chapter https://directory.doabooks.org/handle/20.500.12854/143570 eng image/jpeg Attribution-NonCommercial-NoDerivatives 4.0 International https://www.e-elgar.com/shop/gbp/international-legal-and-ethical-perspectives-on-uterus-transplantation-9781803920481.html https://www.elgaronline.com/edcollchap-oa/book/9781803920498/book-part-9781803920498-21.xml Edward Elgar Publishing Edward Elgar Publishing 10.4337/9781803920498.00021 10.4337/9781803920498.00021 01ceac28-75b4-492a-8eec-f9b98bc6b28c https://creativecommons.org/licenses/by-nc-nd/4.0/ Edward Elgar Publishing Cheltenham, UK open access |
| spellingShingle | Uterus transplantation; Ethics; Law; Open science; Data management and sharing; Registry LNTM Hammond-Browning, Natasha Williams, Nicola J. Chapter 11: Ethical data management and sharing in uterus transplantation - reflections and recommendations |
| title | Chapter 11: Ethical data management and sharing in uterus transplantation - reflections and recommendations |
| title_full | Chapter 11: Ethical data management and sharing in uterus transplantation - reflections and recommendations |
| title_fullStr | Chapter 11: Ethical data management and sharing in uterus transplantation - reflections and recommendations |
| title_full_unstemmed | Chapter 11: Ethical data management and sharing in uterus transplantation - reflections and recommendations |
| title_short | Chapter 11: Ethical data management and sharing in uterus transplantation - reflections and recommendations |
| title_sort | chapter 11 ethical data management and sharing in uterus transplantation reflections and recommendations |
| topic | Uterus transplantation; Ethics; Law; Open science; Data management and sharing; Registry LNTM |
| topic_facet | Uterus transplantation; Ethics; Law; Open science; Data management and sharing; Registry LNTM |
| url | https://directory.doabooks.org/handle/20.500.12854/143570 |
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