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Chapter 5 Transforming the secondary use of patient data in the European Health Data Space

This timely volume provides a comprehensive examination of how the proposed new European Health Data Space (EHDS) legislation will impact upon health and genetic data, individual privacy and providers of health services. With the current legal framework recognised as insufficient in protecting data-...

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Autore principale: Spajić, Daniela
Natura: Online
Lingua:inglese
Pubblicazione: Taylor & Francis 2025
Soggetti:
data protection,medical privacy,EU law,e-health,mhealth,genetic data,European Health Data Space,Data Governance Act,Data Market Economy,Health and genetic data protection
thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTJ Public health and safety law
thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law::LNTM Medical and healthcare law
thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBF Medical and health informatics
thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBN Public health and preventive medicine
Accesso online:https://library.oapen.org/handle/20.500.12657/100202
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Riassunto:This timely volume provides a comprehensive examination of how the proposed new European Health Data Space (EHDS) legislation will impact upon health and genetic data, individual privacy and providers of health services. With the current legal framework recognised as insufficient in protecting data-related rights, the book spotlights the opportunities and challenges posed by the EHDS in balancing the interests of individuals with policymakers and researchers. It considers the impact on individual EU member states while highlighting issues such as changes to patients’ rights, wearable technology, developments in e-health and the secondary use of medical data. Critically, it also examines how the EHDS will operate within existing legal frameworks, including the General Data Protection Regulation, the Data Governance Act and the Data Act. Including contributions from some of the leading scholars in this area, this groundbreaking book will be key reading for students and researchers across law and public health.

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