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Zur Auflösung des Spannungsverhältnisses zwischen Wissenschaftsfreiheit und Datenschutzgrundrecht im Kontext medizinischer Forschung

Patient consent to data processing is regarded as the »gold standard« for achieving a balanced reconciliation between researchers’ academic freedom and the data protection rights of individuals. However, it reveals shortcomings, particularly in the context of secondary use of data. This study theref...

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Autor principal: Berry, Anna
Format: Online
Idioma:alemany
Publicat: Duncker & Humblot 2026
Matèries:
Broad Consent
Datenspende
Einwilligungsmodelle
Forschungsklauseln
Meta-Consent
Recht auf Nichtwissen
thema EDItEUR::L Law::LB International law::LBB Public international law::LBBL Public International law: health
thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNQ IT and Communications law / Postal laws and regulations::LNQD Data protection law
thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNT Social law and Medical law
thema EDItEUR::L Law::LN Laws of specific jurisdictions and specific areas of law::LNX Public Law
thema EDItEUR::M Medicine and Nursing::MB Medicine: general issues::MBG Medical equipment and techniques::MBGR Medical research
Accés en línia:https://directory.doabooks.org/handle/20.500.12854/176356
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Sumari:Patient consent to data processing is regarded as the »gold standard« for achieving a balanced reconciliation between researchers’ academic freedom and the data protection rights of individuals. However, it reveals shortcomings, particularly in the context of secondary use of data. This study therefore develops an approach to expand existing research clauses de lege ferenda and complement them with protective safeguards, with the aim of enabling the use of health data without requiring consent.

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