Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life

Epidermolysis Bullosa (EB) is a group of genetic conditions that cause fragile and blistering skin. Although there are different types of EB, which differ in severity, their signs and symptoms overlap. As a result of this disorder, patients face an unbearable burden in their lives, and their Quality...

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Автори:	Pilo, Cinzia, Benedan, Laura, El Hachem, May, Galeone, Carlotta, Mariani, Paolo, Tadini, Gianluca
Формат:	Online
Мова:	Англійська
Опубліковано:	Firenze University Press 2022
Предмети:	Epidermolysis Bullosa Patient-centered approach Quality of Life Pseudo-Delphi
Онлайн доступ:	ONIX_20220601_9788855184618_554
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