Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life

Epidermolysis Bullosa (EB) is a group of genetic conditions that cause fragile and blistering skin. Although there are different types of EB, which differ in severity, their signs and symptoms overlap. As a result of this disorder, patients face an unbearable burden in their lives, and their Quality...

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Autori principali:	Pilo, Cinzia, Benedan, Laura, El Hachem, May, Galeone, Carlotta, Mariani, Paolo, Tadini, Gianluca
Natura:	Online
Lingua:	inglese
Pubblicazione:	Firenze University Press 2022
Soggetti:	Epidermolysis Bullosa Patient-centered approach Quality of Life Pseudo-Delphi thema EDItEUR::J Society and Social Sciences::JH Sociology and anthropology::JHB Sociology::JHBC Social research and statistics
Accesso online:	ONIX_20220915_9788855184618_26
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