Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life
Epidermolysis Bullosa (EB) is a group of genetic conditions that cause fragile and blistering skin. Although there are different types of EB, which differ in severity, their signs and symptoms overlap. As a result of this disorder, patients face an unbearable burden in their lives, and their Quality...
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| Hlavní autoři: | , , , , , |
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| Médium: | Online |
| Jazyk: | angličtina |
| Vydáno: |
Firenze University Press
2022
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| Témata: | |
| On-line přístup: | ONIX_20220601_9788855184618_554 |
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